Have you ever wondered what the absolute worst case of fibromyalgia would be? After all, it’s a disease that affects everyone differently. And it makes sense that some people are affected by it more severely than others.

So what would be the worst case of fibromyalgia? How severely could it affect your life? And what could you do to treat it?

What Is Fibromyalgia?

Fibromyalgia is a disease that is not well understood. Essentially, it creates a general feeling of pain and fatigue around your body. There are a number of possible explanations for what causes fibromyalgia, but no one is sure what the right one is.

Some doctors believe that fibromyalgia is an autoimmune disease. That means that the body’s immune system begins to attack the healthy cells which make them inflamed and tender and causes aching in certain points around your body.

While no one knows exactly what the cause of fibromyalgia is, it’s a debilitating illness that affects people in a lot of different ways.

What Does It Do To Your Body?

Fibromyalgia causes a number of very different symptoms. And it varies so much that no two people have the exact same reaction to fibromyalgia. However, the most common system, and one that all fibromyalgia sufferers have, is chronic pain.

The pain is located along 18 specific points of the body. These are usually in your joints on both sides of the body and the level of pain can be different for different people. The level of pain can also change throughout the day.

And another common symptom for people with fibromyalgia is fatigue. Fibromyalgia sufferers often find that they can’t sleep very well, and when they do, they don’t wake up feeling refreshed the next day. As a result, people with fibromyalgia end up feeling something that is usually called a “fibro-fog.”

Fibro-fog is the name for a sort of mental cloudiness that comes with fibromyalgia. It usually presents as short-term memory loss, or trouble focusing on tasks.

Finally, fibromyalgia can cause some slightly more unusual symptoms. People with fibromyalgia often have irritable bowel syndrome, and gastrointestinal problems are very common among people who have fibromyalgia. And there are other conditions like constant itching which sometimes affect fibromyalgia sufferers.

What’s The Worst Case Of Fibromyalgia?

So if you’ve been diagnosed, you’re probably wondering how bad your fibromyalgia might actually get (what the worst case of fibromyalgia might be, basically).

Well, the good news is that your fibromyalgia won’t kill you. But fibromyalgia can still severely limit your quality of life.

Fibromyalgia affects many people by causing them to feel a constant feeling of pain and fatigue. So for people who have fibromyalgia, daily life can get very difficult.And the stories of people who have suffered from the illness for decades are heartbreaking.

Generally, fibromyalgia begins in its early stages with some warning signs. These are things like chronic fatigue and mysterious pain in eighteen points around the body. This pain is what causes most fibromyalgia patients to go to the doctor for a diagnosis. Though, if you have fibromyalgia, you probably already know how that goes.

Fibromyalgia then progresses into the chronic stage, where the pain and fatigue are constant. This is what most fibromyalgia patients live with every day. And though there are treatments, not all are effective. And everyone’s fibromyalgia seems to respond differently to different drugs.

Even the most up to date and cutting edge treatments might be completely ineffective for a lot of people. And this kind of treatment-resistant condition is the worst case of fibromyalgia since it is unresponsive to treatment and can often seem to get worse.

This is a tricky subject to discuss with any certainty, however. While most doctors will say that fibromyalgia isn’t a progressive disease for most people, some sufferers definitely report that their disease gets worse over time.

Can Fibromyalgia Make You Disabled?

So if you’ve just been diagnosed with fibromyalgia, there’s a chance that your pain and fatigue levels might begin to plateau and stay roughly where they are, though some days will be worse than others.

But in the worst case of fibromyalgia, the disease will get more painful and debilitating over time.

For people whose situation is the worst case of fibromyalgia, they will likely suffer their entire lives with constant, and unmanageable pain. This leads to serious problems in their daily lives.

Often, they lose their jobs due to the fact that they are effectively disabled. The constant pain and fatigue and the mental cloudiness, or fibro fog, makes working impossible.

And for people with extremely severe fibromyalgia, even getting out of bed is close to impossible. They require heavy doses of painkillers to even walk. And it takes them heavy doses of sleeping medication to get anything close to a full night’s sleep.

For those people who have the worst case of fibromyalgia, every day is a physical struggle. But it can be an emotionally struggle as well.

Can The Worst Case Of Fibromyalgia Affect Your Relationships?

Having severe fibromyalgia makes it difficult to maintain relationships with friends and family. People who used to enjoy your company sometimes drift away because your chronic pain and lack of mobility become tough for them to deal with. While that isn’t even remotely fair, it’s often how people are.

So in the worst case of fibromyalgia, expect to lose some of the friends you had who aren’t really friends. But the good side is that you will see who truly cares about you because they will stick around.

In addition, dealing with such a severely limited quality of life is extremely difficult emotionally. The constant pain can make it feel like life isn’t worth living. And suicide is tragically common among people with severe fibromyalgia.

It’s important to get help if you feel like you might be considering taking your own life. Suicide is never a good solution, and the saying that “it doesn’t end the pain, it only spreads it to the people who care about you,” is very true.

Fibromyalgia is a horrific disease to live with. And it takes a special kind of courage to endure the worst case of fibromyalgia. So tell us, has your fibromyalgia gotten worse? What are your worst symptoms like? Does anything work for you? Tell us in the comments.

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5 COMMENTS

  1. After having viral meningitis 30 years ago, I went to my PCP and complained of my not being able to shake the terrible fatigue and constant pain and she diagnosed me with Fibromyalgia. As the years progressed, so did my fibro-fog, constant, debilitating pain and sick exhaustion. My flares became the norm, I was forced to go out on disability at 59, and my life is very quiet and spent, primarily alone. But, none the less, I consider myself to be one of the lucky ones. I’m still able to care for myself, I get up and showered and dressed every day and consider all these to be victories.

  2. I’ve gotten to the point that I’m embarrassed about my Fibromyalgia. I don’t want anyone to watch me get up from a chair, because I move so slow. I’m not working right now, because I can’t, and no that makes me feel lazy. I’m in tremendous pain, and I feel self-loathing creeping up on me. I don’t like feeling like this.

  3. I’ve lived with fibromyalgia for 20+ years. There isn’t enuf pain medicine to curb the pain. Since I was diagnosed 6 years ago with rheumatoid arthritis, my Rheumatologists is GREAT! I’m on the last medicine available to me, I started out on Plaquenil, then was diagnosed with Macula Degeneration in both eyes so was put on Methotrexate which did not work for me. My last option, due to Macular Degeneration is Leflunomide. It seems since I’ve been taking it, about 2 years, it takes care (for the most part) of the rheumatoid, osteoarthritis & the fibromyalgia. It certainly doesn’t by any means eleminate all the pain but it has definitely made a huge difference. As I said, this is the only option left for all my conditions so I hope I can continue taking it for as long as possible with no complications

  4. I started getting fibromyalgia 3 1/2 years ago. I have tried several things in order to get rid of the pain, stiffness, headaches, etc. The things that have worked best for me are: Taking 2 or more calcium/magnesium capsules at night. Taking Turmeric 2-3 times a day. Doing acupuncture once a week the last two years. This summer I started drinking only water with a PH of 7.6 or more, juicing organic fruits and vegetables, eating very little solid food. I tried essential oils for a while but they started breaking me out. The Frankincense and Lavender worked the best for me for pain and stiffness but I don’t use them anymore. I also take a probiotic and digestive enzymes. I take vitamin D3 and garlic/parsley oil capsules, too. Overall, the calcium/magnesium, acupuncture, and juicing have worked the best.

  5. My Fibromyalgia is getting worse. It used to be that the winter was also the worst for me. Now its all year around. I hardly sleep, I’m up about 4-5 times a night. My right side of my body always hurts, and the brain fog is getting worse. I work 2 part-time jobs and can hardly go. I feel stupid about half the time with the brain fog. My eye sight has even gotten worse. Sometimes I can hardly focus on words. I have thought about seeing if I were a candidate for disability, but I’m not sure if I could. Has anybody gotten disability for this?

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